In searching for medical advice, be careful about involvement with online medical patient forums and support groups on social media. Not all online medical interest groups and forums maintain high standard of enrollment and moderation. Individuals certified in their knowledge and direction are musts for a good group. Without proper vigilance and critical thinking, you may encounter dicey situations or be influenced by inherent bias. This article delves into the bad side of online patient forums and medical interest groups for patients with rare diseases. I write from my own experience.